◆ Our Mission ◆
We're here to end the silence.
Chalkbird Inc. is dedicated to saving lives by advancing awareness, education, and research for Vascular Ehlers-Danlos Syndrome and other Heritable Disorders of Connective Tissue.
— through community events, advocacy, and collaboration —
◆ Where to Begin ◆
How would you like to get involved?
◆ VEDS at a Glance ◆
A rare disease that shouldn't be silent.
VEDS is one of the most dangerous and least understood rare diseases in America. Awareness is how we change that.
COL3A1
The Cause
A mutation in the COL3A1 gene disrupts Type III collagen — weakening arteries, organs, and skin.
AwareNESS
The Danger
VEDS often gives no warning until an emergency. Many patients don't know they have it — and neither do their doctors.
Genetic
The Inheritance
50% inheritance rate means entire families can be quietly affected for generations before diagnosis.
◆ Support Our Cause ◆
Every gift reaches a family who needs it.
Make a gift today.
One-time or monthly. Any amount matters.
Your donation funds first responder training, awareness materials, and research into the disease that affects 1 in 50,000, and the families who still don't know.
◆ Stay Connected ◆
Join the Chalkbird family.
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